Tag Archives: rare eye disease

Chronic Voice Link-up: Preparing for the Autumn Season

My summer was hijacked by hospital appointments, and I am looking forward to my favourite time of year for seasonal celebrations. Read on for my take on the October prompts for the Chronic Voice Link-Up. DISABLING It has been almost … Continue reading

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World Blood Donor Day

Today is World Blood Donor Day! Do you donate? I started donating blood last year purely for my own medication, which is bizarre. I receive eyedrops made from my blood serum, to replace the lack of naturally produced serum in … Continue reading

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Chronic Voice Link-up: Health, Work and Lifestyle with Chronic Illness

It has been a while since we did the blog link-up from A Chronic Voice. Sheryl has been dealt another dramatic blow to her health and has understandably been unable to work. She is slowly returning to us and was … Continue reading

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My Chronic Pain Journey: What is a Normal Life?

What is a normal life? Can we define a normal life, or is it different for everyone? I don’t know what a normal life is, but I do know that my adult life has been a constant struggle to work, … Continue reading

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My Chronic Pain Journey: Seeing Christmas with Blurred Vision

I would usually share my Chronic Voice Link Up blog post at this time of the month, but Sheryl is hosting a huge Christmas giveaway for chronically ill people so there are no prompts today. Instead, I will share an … Continue reading

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My Chronic Pain Journey: More Hospital Appointments

I would normally share my Chronic Voice Link-Up blog post today but this month there are no writing prompts because Sheryl is preparing for her Big Christmas Giveaway event, how exciting! I decided to share a quick update on my … Continue reading

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Chronic Voice Link-up: Strong in Times of Crisis  

Welcome to September and our monthly A Chronic Voice blog link-up. Read on for my take on the September prompts. GAZING I must admit that I am not a summer person. Autumn/Winter is my season, and I am happy to … Continue reading

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My Chronic Pain Journey: Blood Eyedrops

My blood eyedrops finally arrived! Well, blood serum eyedrops to be exact. The proper name is autologous eyedrops, but I’m still getting used to them. There’s some pretty cool science involved but I can’t explain the specifics. Basically, I met … Continue reading

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Chronic Voice Link-up: Wandering the Chronic Pain Path

Welcome to August and our monthly A Chronic Voice blog link-up. Read on for my take on the August prompts. WANDERING I finally met my new ophthalmologist at the hospital. He is both a private and an NHS doctor, and … Continue reading

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Chronic Voice Link-up: Blood Donation for Rare Eye Disease Treatment

Welcome to June and our monthly A Chronic Voice blog link-up. Today is my blood donation day to have special eye drops made for my personal use. Read on to find out more! ACCUMULATING Today I am accumulating blood! Well, … Continue reading

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