Tag Archives: rare eye disease

Chronic Voice Link-up: Blood Donation for Rare Eye Disease Treatment

Welcome to June and our monthly A Chronic Voice blog link-up. Today is my blood donation day to have special eye drops made for my personal use. Read on to find out more! ACCUMULATING Today I am accumulating blood! Well, … Continue reading

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#Ad – Look what’s just arrived, my #DryEye products!

Having Dry Eyes is a pain but luckily Thea Pharmaceuticals offer these great products to help my eyes feel normal again. I was very excited to speak with a rep about promoting the importance of eye care products for everyday … Continue reading

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Chronic Voice Link-up: Thanking the NHS

Welcome to May and our monthly Chronic Voice blog link-up. I am experiencing a chronic pain flare-up with my rare eye disease, but I am battling through each day with a smile as always. Here is my response to the … Continue reading

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My Chronic Pain Journey: A Huge Breakthrough

Yesterday marked a significant breakthrough in the treatment of my rare congenital disease, Lymphodoema Distichiasis. I finally met the elusive doctor that I should have seen back in Oct (when I went to the wrong hospital). He immediately ordered a … Continue reading

Posted in dry eye, dry eyes, eye health, eyes, health, rare eye condition | Tagged , , , , , , , , , | 6 Comments

Will the NHS Help Me?

I am feeling quite low with regards to my health. Earlier this year I decided to transfer my specialist treatment from Manchester Royal Eye Hospital to Mid Cheshire Hospitals, making it easier for me to travel to appointments. I did … Continue reading

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My Chronic Pain Journey

Lessons learned during lockdown, looking forward to new business, and letting go of what no longer serves my best interests. Feeling I am feeling much better now that my children are back at school. This is my favourite time of … Continue reading

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How to Unlock Your Potential and Stop Unhealthy Behaviours

Navigating life beyond lockdown, mental illness and building a career while coping with a chronic pain disorder. Unlocking I feel like I am finding myself again after a very long lockdown. For me it goes way beyond the pandemic. For … Continue reading

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Why Self Care is Important when your Spouse is Depressed

I joined the social network for A Chronic Voice because I needed to find people who understand what life is like with chronic illness, people like me. Today I have written a post using the July link-up prompts, to show … Continue reading

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My Treatment Plan for Rare Eye Diseases

I live with rare eye disease, a condition known as Lymphedema Distichiasis. For me the main disorder is the distichiasis, which basically means I have eyelashes that grow on the inside of my eyelids and scratch the corneas. All my … Continue reading

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My Spiritual Journey: Reiki and Eye Surgery

Last weekend I attended Manchester Royal Eye Hospital for a minor operation on my eyes. Well, I thought it would be both eyes, but the condition decided otherwise. Now I am to be allocated a return appointment to have my … Continue reading

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