Tag Archives: rare eye disease

Chronic Voice Link-up: Strong in Times of Crisis  

Welcome to September and our monthly A Chronic Voice blog link-up. Read on for my take on the September prompts. GAZING I must admit that I am not a summer person. Autumn/Winter is my season, and I am happy to … Continue reading

Posted in eye health, health, holistic health, pagan mother, pain | Tagged , , , , , , , , , , , , | 4 Comments

My Chronic Pain Journey: Blood Eyedrops

My blood eyedrops finally arrived! Well, blood serum eyedrops to be exact. The proper name is autologous eyedrops, but I’m still getting used to them. There’s some pretty cool science involved but I can’t explain the specifics. Basically, I met … Continue reading

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Chronic Voice Link-up: Wandering the Chronic Pain Path

Welcome to August and our monthly A Chronic Voice blog link-up. Read on for my take on the August prompts. WANDERING I finally met my new ophthalmologist at the hospital. He is both a private and an NHS doctor, and … Continue reading

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Chronic Voice Link-up: Blood Donation for Rare Eye Disease Treatment

Welcome to June and our monthly A Chronic Voice blog link-up. Today is my blood donation day to have special eye drops made for my personal use. Read on to find out more! ACCUMULATING Today I am accumulating blood! Well, … Continue reading

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#Ad – Look what’s just arrived, my #DryEye products!

Having Dry Eyes is a pain but luckily Thea Pharmaceuticals offer these great products to help my eyes feel normal again. I was very excited to speak with a rep about promoting the importance of eye care products for everyday … Continue reading

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Chronic Voice Link-up: Thanking the NHS

Welcome to May and our monthly Chronic Voice blog link-up. I am experiencing a chronic pain flare-up with my rare eye disease, but I am battling through each day with a smile as always. Here is my response to the … Continue reading

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My Chronic Pain Journey: A Huge Breakthrough

Yesterday marked a significant breakthrough in the treatment of my rare congenital disease, Lymphodoema Distichiasis. I finally met the elusive doctor that I should have seen back in Oct (when I went to the wrong hospital). He immediately ordered a … Continue reading

Posted in dry eye, dry eyes, eye health, eyes, health, rare eye condition | Tagged , , , , , , , , , | 7 Comments

Will the NHS Help Me?

I am feeling quite low with regards to my health. Earlier this year I decided to transfer my specialist treatment from Manchester Royal Eye Hospital to Mid Cheshire Hospitals, making it easier for me to travel to appointments. I did … Continue reading

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My Chronic Pain Journey

Lessons learned during lockdown, looking forward to new business, and letting go of what no longer serves my best interests. Feeling I am feeling much better now that my children are back at school. This is my favourite time of … Continue reading

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How to Unlock Your Potential and Stop Unhealthy Behaviours

Navigating life beyond lockdown, mental illness and building a career while coping with a chronic pain disorder. Unlocking I feel like I am finding myself again after a very long lockdown. For me it goes way beyond the pandemic. For … Continue reading

Posted in eye health, health, holistic health, mind body spirit, Random Musings | Tagged , , , , , , , , , , , | 11 Comments