Tag Archives: rare eye disease

My Chronic Pain Journey: A Huge Breakthrough

Yesterday marked a significant breakthrough in the treatment of my rare congenital disease, Lymphodoema Distichiasis. I finally met the elusive doctor that I should have seen back in Oct (when I went to the wrong hospital). He immediately ordered a … Continue reading

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Will the NHS Help Me?

I am feeling quite low with regards to my health. Earlier this year I decided to transfer my specialist treatment from Manchester Royal Eye Hospital to Mid Cheshire Hospitals, making it easier for me to travel to appointments. I did … Continue reading

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My Chronic Pain Journey

Lessons learned during lockdown, looking forward to new business, and letting go of what no longer serves my best interests. Feeling I am feeling much better now that my children are back at school. This is my favourite time of … Continue reading

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How to Unlock Your Potential and Stop Unhealthy Behaviours

Navigating life beyond lockdown, mental illness and building a career while coping with a chronic pain disorder. Unlocking I feel like I am finding myself again after a very long lockdown. For me it goes way beyond the pandemic. For … Continue reading

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Why Self Care is Important when your Spouse is Depressed

I joined the social network for A Chronic Voice because I needed to find people who understand what life is like with chronic illness, people like me. Today I have written a post using the July link-up prompts, to show … Continue reading

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My Treatment Plan for Rare Eye Diseases

I live with rare eye disease, a condition known as Lymphedema Distichiasis. For me the main disorder is the distichiasis, which basically means I have eyelashes that grow on the inside of my eyelids and scratch the corneas. All my … Continue reading

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My Spiritual Journey: Reiki and Eye Surgery

Last weekend I attended Manchester Royal Eye Hospital for a minor operation on my eyes. Well, I thought it would be both eyes, but the condition decided otherwise. Now I am to be allocated a return appointment to have my … Continue reading

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