Tag Archives: lymphedema distichiasis

My Chronic Pain Journey

Lessons learned during lockdown, looking forward to new business, and letting go of what no longer serves my best interests. Feeling I am feeling much better now that my children are back at school. This is my favourite time of … Continue reading

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How to Unlock Your Potential and Stop Unhealthy Behaviours

Navigating life beyond lockdown, mental illness and building a career while coping with a chronic pain disorder. Unlocking I feel like I am finding myself again after a very long lockdown. For me it goes way beyond the pandemic. For … Continue reading

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When Doctors don’t know what’s Wrong

I am a medical mystery. All my life I have lived with a chronic disease called Lymphedema Distichiasis. It took many years for my parents to get a proper diagnosis, and my younger brother has the same condition. It is … Continue reading

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My Treatment Plan for Rare Eye Diseases

I live with rare eye disease, a condition known as Lymphedema Distichiasis. For me the main disorder is the distichiasis, which basically means I have eyelashes that grow on the inside of my eyelids and scratch the corneas. All my … Continue reading

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My Spiritual Journey: Reiki and Eye Surgery

Last weekend I attended Manchester Royal Eye Hospital for a minor operation on my eyes. Well, I thought it would be both eyes, but the condition decided otherwise. Now I am to be allocated a return appointment to have my … Continue reading

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