Tag Archives: lymphedema distichiasis

Why We Need to Take Charge of Our Healthcare

How is your physical health? How is your mental and emotional health? Do you rely on the NHS for support, do you use private healthcare, or do you simply ignore it and hope it goes away? These are questions I … Continue reading

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Chronic Voice Link-up: Suffering Again but Moving Forward

Welcome to July and our monthly A Chronic Voice blog link-up. My mood has been wild for the past month. I have gone from extreme down in the dumps to wild elation, all due to my chronic pain condition and … Continue reading

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Chronic Voice Link-up: Thanking the NHS

Welcome to May and our monthly Chronic Voice blog link-up. I am experiencing a chronic pain flare-up with my rare eye disease, but I am battling through each day with a smile as always. Here is my response to the … Continue reading

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A Chronic Pain Christmas #spoonie

My eyes are bothering me again. The weather has turned stormy, and whenever we have strong wind, my Dry Eye Syndrome worsens. Whenever we have a dry spell, my Dry Eye Syndrome worsens. In fact, most of the weather extremes … Continue reading

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My Chronic Pain Journey

Lessons learned during lockdown, looking forward to new business, and letting go of what no longer serves my best interests. Feeling I am feeling much better now that my children are back at school. This is my favourite time of … Continue reading

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How to Unlock Your Potential and Stop Unhealthy Behaviours

Navigating life beyond lockdown, mental illness and building a career while coping with a chronic pain disorder. Unlocking I feel like I am finding myself again after a very long lockdown. For me it goes way beyond the pandemic. For … Continue reading

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When Doctors don’t know what’s Wrong

I am a medical mystery. All my life I have lived with a chronic disease called Lymphedema Distichiasis. It took many years for my parents to get a proper diagnosis, and my younger brother has the same condition. It is … Continue reading

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My Treatment Plan for Rare Eye Diseases

I live with rare eye disease, a condition known as Lymphedema Distichiasis. For me the main disorder is the distichiasis, which basically means I have eyelashes that grow on the inside of my eyelids and scratch the corneas. All my … Continue reading

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My Spiritual Journey: Reiki and Eye Surgery

Last weekend I attended Manchester Royal Eye Hospital for a minor operation on my eyes. Well, I thought it would be both eyes, but the condition decided otherwise. Now I am to be allocated a return appointment to have my … Continue reading

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