Tag Archives: lymphedema distichiasis

Chronic Voice Link-up: Thanking the NHS

Welcome to May and our monthly Chronic Voice blog link-up. I am experiencing a chronic pain flare-up with my rare eye disease, but I am battling through each day with a smile as always. Here is my response to the … Continue reading

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A Chronic Pain Christmas #spoonie

My eyes are bothering me again. The weather has turned stormy, and whenever we have strong wind, my Dry Eye Syndrome worsens. Whenever we have a dry spell, my Dry Eye Syndrome worsens. In fact, most of the weather extremes … Continue reading

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My Chronic Pain Journey

Lessons learned during lockdown, looking forward to new business, and letting go of what no longer serves my best interests. Feeling I am feeling much better now that my children are back at school. This is my favourite time of … Continue reading

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How to Unlock Your Potential and Stop Unhealthy Behaviours

Navigating life beyond lockdown, mental illness and building a career while coping with a chronic pain disorder. Unlocking I feel like I am finding myself again after a very long lockdown. For me it goes way beyond the pandemic. For … Continue reading

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When Doctors don’t know what’s Wrong

I am a medical mystery. All my life I have lived with a chronic disease called Lymphedema Distichiasis. It took many years for my parents to get a proper diagnosis, and my younger brother has the same condition. It is … Continue reading

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My Treatment Plan for Rare Eye Diseases

I live with rare eye disease, a condition known as Lymphedema Distichiasis. For me the main disorder is the distichiasis, which basically means I have eyelashes that grow on the inside of my eyelids and scratch the corneas. All my … Continue reading

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My Spiritual Journey: Reiki and Eye Surgery

Last weekend I attended Manchester Royal Eye Hospital for a minor operation on my eyes. Well, I thought it would be both eyes, but the condition decided otherwise. Now I am to be allocated a return appointment to have my … Continue reading

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