Tag Archives: congenital eye disorder

World Blood Donor Day

Today is World Blood Donor Day! Do you donate? I started donating blood last year purely for my own medication, which is bizarre. I receive eyedrops made from my blood serum, to replace the lack of naturally produced serum in … Continue reading

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Chronic Voice Link-up: Strong in Times of Crisis  

Welcome to September and our monthly A Chronic Voice blog link-up. Read on for my take on the September prompts. GAZING I must admit that I am not a summer person. Autumn/Winter is my season, and I am happy to … Continue reading

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Chronic Voice Link-up: Thanking the NHS

Welcome to May and our monthly Chronic Voice blog link-up. I am experiencing a chronic pain flare-up with my rare eye disease, but I am battling through each day with a smile as always. Here is my response to the … Continue reading

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My Chronic Pain Journey: A Huge Breakthrough

Yesterday marked a significant breakthrough in the treatment of my rare congenital disease, Lymphodoema Distichiasis. I finally met the elusive doctor that I should have seen back in Oct (when I went to the wrong hospital). He immediately ordered a … Continue reading

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Is it Time to Make a Change in My Life?

I joined the social network for A Chronic Voice because I needed to find people who understand what life is like with chronic pain. Today I have written a post using the January link-up prompts, to show my experience of … Continue reading

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5 Ways to Understand my Chronic Pain Condition

I joined the social network for A Chronic Voice earlier this year because I needed to find people who understand what life is like with chronic pain. Today I have written a post using the August link-up prompts, to show … Continue reading

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I Need More Eyedrops! #Spoonie

Last week I had to visit my doctor to review my repeat prescriptions for medication. All of them are treatments for severe Dry Eye Syndrome. I have three types of eyedrops available on prescription. None of them contain specific medicine, … Continue reading

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How I Manage my Rare Genetic Disorder

You might have seen my previous blog posts about the rare genetic eye disorder that I live with. Over the years I have called it an illness, a disease, a pain in the backside, and a few other choice words … Continue reading

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Living with Chronic Pain: How reiki saved my sanity

My eyes are bothering me again. The weather has turned stormy, and whenever we have strong wind, my Dry Eye Syndrome worsens. Whenever we have a dry spell, my Dry Eye Syndrome worsens. In fact, most of the weather extremes … Continue reading

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My Spiritual Journey: Reiki and Eye Surgery

Last weekend I attended Manchester Royal Eye Hospital for a minor operation on my eyes. Well, I thought it would be both eyes, but the condition decided otherwise. Now I am to be allocated a return appointment to have my … Continue reading

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