Tag Archives: rare eye disorder

My Chronic Pain Journey: Blood Eyedrops

My blood eyedrops finally arrived! Well, blood serum eyedrops to be exact. The proper name is autologous eyedrops, but I’m still getting used to them. There’s some pretty cool science involved but I can’t explain the specifics. Basically, I met … Continue reading

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Chronic Voice Link-up: Thanking the NHS

Welcome to May and our monthly Chronic Voice blog link-up. I am experiencing a chronic pain flare-up with my rare eye disease, but I am battling through each day with a smile as always. Here is my response to the … Continue reading

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Will the NHS Help Me?

I am feeling quite low with regards to my health. Earlier this year I decided to transfer my specialist treatment from Manchester Royal Eye Hospital to Mid Cheshire Hospitals, making it easier for me to travel to appointments. I did … Continue reading

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Why Self Care is Important when your Spouse is Depressed

I joined the social network for A Chronic Voice because I needed to find people who understand what life is like with chronic illness, people like me. Today I have written a post using the July link-up prompts, to show … Continue reading

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When Doctors don’t know what’s Wrong

I am a medical mystery. All my life I have lived with a chronic disease called Lymphedema Distichiasis. It took many years for my parents to get a proper diagnosis, and my younger brother has the same condition. It is … Continue reading

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Why We Should Look on the Bright Side of Life

I joined the social network for A Chronic Voice because I needed to find people who understand what life is like with chronic pain. Today I have written a post using the February link-up prompts, to show my experience of … Continue reading

Posted in dry eye, dry eyes, eye health, eyes, health, holistic health, pagan mother, Random Musings, rare eye condition, relationships | Tagged , , , , , , , , , , | 2 Comments

How Chronic Pain Impacts on Life

I joined the social network for A Chronic Voice earlier this year because I needed to find people who understand what life is like with chronic pain. Today I have written a post using the September link-up prompts, to show … Continue reading

Posted in dry eye, dry eyes, eye health, eyes, mind body spirit, pagan mother, Random Musings, rare eye condition | Tagged , , , , , , , , , | 8 Comments

5 Ways to Understand my Chronic Pain Condition

I joined the social network for A Chronic Voice earlier this year because I needed to find people who understand what life is like with chronic pain. Today I have written a post using the August link-up prompts, to show … Continue reading

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I Need More Eyedrops! #Spoonie

Last week I had to visit my doctor to review my repeat prescriptions for medication. All of them are treatments for severe Dry Eye Syndrome. I have three types of eyedrops available on prescription. None of them contain specific medicine, … Continue reading

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Living with Chronic Pain: How reiki saved my sanity

My eyes are bothering me again. The weather has turned stormy, and whenever we have strong wind, my Dry Eye Syndrome worsens. Whenever we have a dry spell, my Dry Eye Syndrome worsens. In fact, most of the weather extremes … Continue reading

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