Tag Archives: rare eye disorder

My Chronic Pain Journey: More Hospital Appointments

Posted on November 8, 2021 by SpookyMrsGreen

I would normally share my Chronic Voice Link-Up blog post today but this month there are no writing prompts because Sheryl is preparing for her Big Christmas Giveaway event, how exciting! I decided to share a quick update on my … Continue reading →

Posted in dry eyes, eye health, health, rare eye condition | Tagged #healthblogger, #mummymonday, autologous eyedrops, Catherine Green Author, foxc2 gene, my chronic pain journey, NHS Blood Donation, rare eye disease, rare eye disorder, recessive gene FOX C2, SpookyMrsGreen, the pagan housewife | 1 Comment

My Chronic Pain Journey: Blood Eyedrops

Posted on August 27, 2021 by SpookyMrsGreen

My blood eyedrops finally arrived! Well, blood serum eyedrops to be exact. The proper name is autologous eyedrops, but I’m still getting used to them. There’s some pretty cool science involved but I can’t explain the specifics. Basically, I met … Continue reading →

Posted in eye health, health, pagan mother | Tagged #freeforallFriday, #healthblogger, autologous eyedrops, blood eyedrops, Catherine Green Author, donating blood for NHS, dry eye products, dry eye syndrome, my chronic pain journey, NHS Blood and Transplant, rare eye disease, rare eye disorder, SpookyMrsGreen, the pagan housewife | 4 Comments

Chronic Voice Link-up: Thanking the NHS

Posted on May 10, 2021 by SpookyMrsGreen

Welcome to May and our monthly Chronic Voice blog link-up. I am experiencing a chronic pain flare-up with my rare eye disease, but I am battling through each day with a smile as always. Here is my response to the … Continue reading →

Posted in eye health, health, holistic health, pagan mother | Tagged #mummymonday, #spoonie, a chronic voice link-up, Catherine Green Author, chronic pain condition, chronic voice linkup, congenital eye disorder, lymphedema distichiasis, lymphodoema distichiasis, rare eye disease, rare eye disorder, SpookyMrsGreen, spoonie life, the pagan housewife | 4 Comments

Will the NHS Help Me?

Posted on December 27, 2020 by SpookyMrsGreen

I am feeling quite low with regards to my health. Earlier this year I decided to transfer my specialist treatment from Manchester Royal Eye Hospital to Mid Cheshire Hospitals, making it easier for me to travel to appointments. I did … Continue reading →

Posted in eye health, health, holistic health, self help | Tagged #spoonie, Catherine Green Author, chronic pain condition, feeling depressed, feeling lonely, NHS mental health services, rare eye disease, rare eye disorder, SpookyMrsGreen, the pagan housewife, when doctors don't know what's wrong, will the NHS help me | 1 Comment

Why Self Care is Important when your Spouse is Depressed

Posted on July 13, 2020 by SpookyMrsGreen

I joined the social network for A Chronic Voice because I needed to find people who understand what life is like with chronic illness, people like me. Today I have written a post using the July link-up prompts, to show … Continue reading →

Posted in eye health, holistic health, pagan mother, Random Musings, relationships | Tagged #mummymonday, a chronic voice, author Catherine Green, caring for a depressed spouse, caring for family, chronic pain condition, living with chronic pain, rare eye disease, rare eye disorder, SpookyMrsGreen, the pagan housewife, why self care is important | 9 Comments

When Doctors don’t know what’s Wrong

Posted on June 24, 2020 by SpookyMrsGreen

I am a medical mystery. All my life I have lived with a chronic disease called Lymphedema Distichiasis. It took many years for my parents to get a proper diagnosis, and my younger brother has the same condition. It is … Continue reading →

Posted in eye health, health, holistic health, Random Musings | Tagged #witchywednesday, author Catherine Green, eye health, holistic health, holistic therapies, lymphedema distichiasis, rare eye disorder, SpookyMrsGreen, tarot reading for health advice, the pagan housewife, undiagnosed illness, when doctors don't know what's wrong | 4 Comments

Why We Should Look on the Bright Side of Life

Posted on February 17, 2020 by SpookyMrsGreen

I joined the social network for A Chronic Voice because I needed to find people who understand what life is like with chronic pain. Today I have written a post using the February link-up prompts, to show my experience of … Continue reading →

Posted in dry eye, dry eyes, eye health, eyes, health, holistic health, pagan mother, Random Musings, rare eye condition, relationships | Tagged #mummymonday, a Chronic Voice linkup, author Catherine Green, chronic pain condition, dry eye syndrome, living with chronic pain, look on the bright side, love and marriage, rare eye disorder, SpookyMrsGreen, the pagan housewife | 2 Comments

How Chronic Pain Impacts on Life

Posted on September 16, 2019 by SpookyMrsGreen

I joined the social network for A Chronic Voice earlier this year because I needed to find people who understand what life is like with chronic pain. Today I have written a post using the September link-up prompts, to show … Continue reading →

Posted in dry eye, dry eyes, eye health, eyes, mind body spirit, pagan mother, Random Musings, rare eye condition | Tagged #spoonie, a chronic voice, blog linky chronic voice, dry eye syndrome, how chronic pain impacts on life, ingrowing eyelashes, lymphodoema distichiasis, rare eye disorder, SpookyMrsGreen, the pagan housewife | 8 Comments

5 Ways to Understand my Chronic Pain Condition

Posted on August 19, 2019 by SpookyMrsGreen

I joined the social network for A Chronic Voice earlier this year because I needed to find people who understand what life is like with chronic pain. Today I have written a post using the August link-up prompts, to show … Continue reading →

Posted in eye health, health, holistic health, pagan mother, Random Musings | Tagged 5 ways to understand my chronic pain condition, congenital eye disorder, distichiasis, dry eye syndrome, ingrowing eyelashes, living with chronic pain, lymphodoema distichiasis, rare eye disorder, SpookyMrsGreen, the pagan housewife | 4 Comments

I Need More Eyedrops! #Spoonie

Posted on March 25, 2019 by SpookyMrsGreen

Last week I had to visit my doctor to review my repeat prescriptions for medication. All of them are treatments for severe Dry Eye Syndrome. I have three types of eyedrops available on prescription. None of them contain specific medicine, … Continue reading →