Chronic Voice Link-up: Keeping it Real in My Life

Welcome to April and our monthly Chronic Voice blog link-up. I am balancing my chronic eye disease and the associated pain with my need to move forward in life. Here is my response to the monthly writing prompts.

Photo by Bich Tran on


As we move into Spring, I feel like a weight is lifting after the long, cold winter. My garden is coming alive with new shoots and pretty flowers, the trees are growing leaves again, and somehow life doesn’t feel quite so dreary anymore. Despite a recent flare-up with my eye condition that left my face swollen and my vision blurred, I am cheerful about what we have to look forward to.


While it is easy to forget my problems and my chronic pain on a good day, I am always aware that life goes on, good and bad. A good portion of my reiki lifestyle practice involves grounding work to ensure I stay connected to and aware of the world around me. Life can’t be all sunshine and flowers. Sometimes we work in the shadows too.


I decided to treat myself to some new bath and skincare products and so I am luxuriating in the scents and sensations of different bath oils, shower gels and moisturizing creams. When I take a little time with my shower routine and focus on my body, I do feel better. Sometimes all I need is a little time for selfcare and a nice home spa on a chronic pain day.


We have endured a tough year during the pandemic, and it is not over yet. While we are moving out of lockdown and beginning to socialize, we now face the daunting task of being out in crowds of people again. It seems unthinkable after what has passed, and I have decided to take small steps back into socialising again. I never felt comfortable in large crowds anyway, so this “new normal” might be easier for me to cope with when we have to limit social interaction.  


I am currently separated from my husband and stuck in some kind of limbo with our relationship. He refuses to accept our situation and I am trying not to make it any worse for our children, meaning I have to spend time in his company. We do get on as friends, but I struggle with my feelings about all that has passed. I am trying to sustain as healthy a relationship as possible, but I don’t know how much longer I can continue when he refuses to repair the damage he has caused.

Chronic Voice Link-Up

I joined the social network for A Chronic Voice because I needed to find people who understand what life is like with chronic illness, people like me. Today I have written a post using the April link-up prompts, to show my experience of living with a chronic pain disorder. Click here to find other blog posts from fellow chronic pain sufferers, or #spoonies as we call ourselves online.

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6 Responses to Chronic Voice Link-up: Keeping it Real in My Life

  1. RaisieBay says:

    I’m sorry to hear about your recent flare up.
    I don’t miss socialising and I don’t think I’ll be rushing back into it. I guess I would miss my family if I actually had any.
    I’m so sorry to hear about your separation, it’s such a difficult situation. We always try to make things easier on our children when in fact our own happiness is what makes them cope the best. Look after yourself and keep enjoying that pampering x

  2. Carrie Kellenberger says:

    I’m so sorry to hear about your flare and I hope it goes down soon. That said, you had me nodding along with your luxuriating prompt, so I’m going to take a nice spa bath tonight! Thanks for the reminder!

  3. Katie Clark says:

    It must be really hard to handle being a mommy and handling a marriage that is in limbo. Relationships can be so difficult. I hope that something happens to bring about a resolution so that you can feel centered. I”m sure glad you joined A Chronic Voice. We learn so much from one another and find encouragement, understanding, and connection.

    • Thank you. I feel a lot better now than I did last year because I took what action I could to make the situation easier for me. I might be a lone parent but now I can handle it better.

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