Tag Archives: living with rare disease

My Story for Rare Disease Day

Today is Rare Disease Day, where people like me can share our stories, connect with other people in similar situations, and know that we are not alone. Do I have a disease or a condition? I have only just learned … Continue reading

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Why We Need to Take Charge of Our Healthcare

How is your physical health? How is your mental and emotional health? Do you rely on the NHS for support, do you use private healthcare, or do you simply ignore it and hope it goes away? These are questions I … Continue reading

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